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Syringomyelia
Syringomyelia (sear-IN-go-my-EEL-ya) is a disorder in which a cyst forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying a portion of the spinal cord from its centre and expanding outward. As a syrinx widens it compresses and injures nerve fibres that carry information from the brain to the extremities.
Chiari Malformation
Chiari Malformations (CM)(key-Ar-ee—mal-for-May-Shun) are structural defects in the cerebellum, the part of the brain that controls balance. Normally the cerebellum and parts of the brain stem sit in an indented space at the lower rear of the skull, above the foramen magnum (a funnel-like opening to the spinal canal). When part of the cerebellum is located below the foramen magnum, it is called a Chiari malformation.
Chronic & Rare Disease
Chronic diseases such as diabetes, cancer, arthritis, mental illness, and cardiovascular and chronic respiratory diseases are major contributors to reduced quality of life, loss of productivity, and increased hospitalization and health care costs as well as premature death in Canada. Out of every 5 Canadians aged 20 years or older, 3 have a chronic disease and 4 are at risk of developing a chronic condition.
Homelessness
Homelessness is impacting our community, we were able to help get a young man with ailments off the street after being kicked out the shelter, having a seizure and hospitalized. Our board brought on a board member who's focus is helping the homeless community. While we recognize that there is a need to connect the dots and help thos impacted with an ailment who are homeless we wish to do what we can to help.