RARE DISEASE EXPO

Expo & Schedule

Rare Diseases, Symptoms and Chronic Disease Management.

Our Expo teaches how to improve Quality of Life with Patients & Experts working together focusing on Story Telling, Workshops, an Ask The Experts feature to answer questions and educate about Rare Diseases, Symptoms, Chronic Disease Management and General Health & Wellness. Learn how to navigate the healthcare system to improve access to Medical Professionals, Services and Treatments. Program is FREE to the public. Once registered, you will receive a confirmation email with details for this free event to join.

6:30pm – 6:35pm Welcome

6:35pm– 6:45pm Patient Story: Syringomyelia & Chiari Malformation (10 Mins)

Alicia McLeod

6:45pm – 7:15pm Workshop #1: (30 Mins)

Chronic Pain Management

Dr. Bali, Dhaya Integrative Services

7:15pm – 7:25pm Patient Story: Mel Funnell (10 Mins)

Occipital Neuralgia Pain & Stimulator Surgery

7:25pm – 7:35pm Sickle Cell Do’s & Don’t (10 Mins)

Tanis Henry, Registered Nurse

7:35pm – 8:05pm Workshop #2: (30 Mins)

Health & Wellness (Nutrition) TBD

8:05pm - 8:25pm Ask The Experts Panel: Patients & Experts (20 Minutes)

Alicia McLeod, Mel Funnell, Tanis Henry, Workshop #1 & Workshop #2

8:25pm - 8:30pm Closing

Please share.

Speakers

Alicia McLeod

Syringomyelia & Chiari Malformation Patient Story

Alicia has a passion for helping others. She is a manager for a charity who helps individuals and children experiencing homelessness. In her free time, she raises awareness about rare diseases, mental health and homelessness through fundraisers, her business and social media. At sixteen her best friend Justice was murdered this turned her world upside down. Before finding a passion for philanthropy she would donate in his memory whenever a grocery clerk would ask her if she’d like to donate. A few years later she was diagnosed with chiari malformation, syringomyelia and a panic disorder. She chooses to rise above her trials and tribulations by being the change she wishes to see I’m the world!

Tanis Henry, Registered Nurse

SICKLE CELL DO'S & DON'TS

Tanis Russell is a Clinical Practice Leader, and a experienced Registered Nurse, skilled in Critical Care and Emergency Medicine. Tanis is passionate about the development of health policy initiatives , and facilitating nursing education for nurses at every stage of their career. Tanis values education and appreciates its impact on nursing practice, and its influence on patient care outcomes. Tanis is experienced in identifying, planning, implementing and evaluating educational strategies that influence nursing practice and facilitate the change required to meet the patient healthcare needs. Tanis has received a Master's degree in Nursing with a focus on Health Policy & Leadership in Education through Ryerson University, and is a proud inductee of the Sigma Theta Tau International Honor Society of Nursing. Tanis moved to Durham Region 11 years ago, and is passionate in serving the community.

February 28, 2022 6:30pm - 8:30PM EST