A place to share, learn and support each other.
Syringomyelia Patient Story Caroline Rose Brownell
About two weeks into her life, she started vomiting bile. She would choke shortly after starting to eat. After various studies, she was diagnosed with Nasopharyngeal Reflux, Dysphagia, GERD, and Failure to Thrive. She was also diagnosed in the first year with a Stills heart murmur and Strabismus.
CHIARI MALFORMATION pATIENT STORY Robin Nicholl
I've been sick most of my life. I have a lot of health problems that can get me down but I always try to work at being happy and as healthy as I can be thankfully ingrained in me from very supportive Grandparents and Mom and Dad. I also believe in trying to help others online who need someone to help and understand these illnesses and how to live with them. We never had support groups when I was diagnosed, it was scary and made us feel very alone, now no one needs to be alone especially with support groups like these. www.carionfenn.net. I've had success with Massage Therapy and Acupuncture so I'm continuing my route with more natural treatments and see what happens down the road from here because my main goal is to always try and have better health and a continued happier life.
Cancer Patient sTORY Olga Lambert
Olga herself had Breast Cancer in 2009 and went to have 2 other cancers in the last 10 years. She is a three times Cancer survivor. She has made it her new mission to bring awareness to people to be pro-active and self-advocate of their health care.
Neurofibromatosis Patient Story Valerie Watier
Despite all the issues that having neurofibromatosis (NF), a rare disease that causes tumors to grow on and in the body has thrown at her – Val has not only remained positive about her own life, but has offered help and support to others. Val did not know what she had until middle age.
Ashley Henery
Hello, my name is Ashley Henery and I am 16 years old and an active volunteer around Ajax and other communities, today I am going to tell my story about how my outlook on life changed almost 3 months ago. It all started on February 23rd, the agonizing, annoying lower abdominal pain I was experiencing. Despite experiencing this pain, I attended co-op because I figured it was just “regular cramps”.
At co-op, it became difficult to stand and complete my tasks, it got so bad I started throwing up. But, I didn’t mention anything to my supervisor because I wanted to complete that day of co-op. When I left my placement, I immediately called my mom and updated her on how I was feeling, to which she responded, “go sign in for co-op and go to the hospital if you need to”. So, I went back to school thinking I was about to go about the rest of my day regularly. But, during the lunch period, I found myself laying down on the dirty floors of Ajax High without a care in the world for anything but relief.