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Carion Fenn Foundation

Registered Charity #: 802775791RR0001

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    • HOME
    • WELLNESS
      • HEALTH 180 - ROGERS TV
      • BLACK HEALTH DAY
      • FOOD PROGRAM
      • SENIORS PROGRAM
      • ACCESSIBILITY CONFERENCE
      • HOMELESS PROGRAM
      • BLACK EXPERIENCE TOWNHALL
      • RARE DISEASE EXPO
    • MENTAL HEALTH
      • MENTAL HEALTH
      • RESILIENCE WORKSHOP
      • YOUTH PROGRAM
      • YOUTH MENTAL HEALTH CHAT
      • Flag Raising - Pickering
      • QUEENS PARK CHAT
      • BLACK OPEN MIC
      • MENTAL HEALTH FORUM
    • GET INVOLVED
      • WAYS TO GIVE
      • DONATE NOW
      • T-SHIRT
      • ADVOCACY & AWARENESS
      • SYRINGOMYELIA
      • CHIARI MALFORMATION
      • CHRONIC & RARE DISEASE
      • ADOPT A PARK-TOWN OF AJAX
    • ABOUT US
      • Carion Fenn Foundation
      • Carion Fenn
      • DURHAM BLACK NETWORK
      • RESOURCE DIRECTORY
      • ALEX MONAGHAN
      • OUR TEAM
      • PERSONAL STORIES
      • Contact
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Carion Fenn Foundation

Registered Charity #: 802775791RR0001

Signed in as:

filler@godaddy.com

  • HOME
  • WELLNESS
    • HEALTH 180 - ROGERS TV
    • BLACK HEALTH DAY
    • FOOD PROGRAM
    • SENIORS PROGRAM
    • ACCESSIBILITY CONFERENCE
    • HOMELESS PROGRAM
    • BLACK EXPERIENCE TOWNHALL
    • RARE DISEASE EXPO
  • MENTAL HEALTH
    • MENTAL HEALTH
    • RESILIENCE WORKSHOP
    • YOUTH PROGRAM
    • YOUTH MENTAL HEALTH CHAT
    • Flag Raising - Pickering
    • QUEENS PARK CHAT
    • BLACK OPEN MIC
    • MENTAL HEALTH FORUM
  • GET INVOLVED
    • WAYS TO GIVE
    • DONATE NOW
    • T-SHIRT
    • ADVOCACY & AWARENESS
    • SYRINGOMYELIA
    • CHIARI MALFORMATION
    • CHRONIC & RARE DISEASE
    • ADOPT A PARK-TOWN OF AJAX
  • ABOUT US
    • Carion Fenn Foundation
    • Carion Fenn
    • DURHAM BLACK NETWORK
    • RESOURCE DIRECTORY
    • ALEX MONAGHAN
    • OUR TEAM
    • PERSONAL STORIES
    • Contact

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Membership


1 in 12 & over 350 million person have a rare disease or dis

Join our SM, CM & Rare Disease Community!

BECOME A MEMBER

Join us and become part of our community, representing and supporting patients & those impacted by Syringomeylia, Chiari Malformation, Chronic & Rare Diseases. 

A place to share, learn & support...

Carion Fenn Foundation is a Registered Charity, providing Education, support and resources to the public and those impacted by Syringomyelia, Chiari Malforamtion and Rare Diseases. 

Community Support:

Our meetings embrace support, provide educational information, and allow attendees to learn about resources available to them to live their best life. Join us for a place to share, learn, and support each other. Accessible WORLDWIDE to everyone with online access allowing you to join in to connect in real time. 

Please share this event with Family, Friends and Contacts, to help others who require support. 

Virtual Support Group

Patient / Individual ($25/annually)

Individuals who choose to become a member of Carion Fenn Foundation received benefits with the satisfaction of knowing that they are not alone and helping othes with Syringomyelia, Chiari Malformation and Rare Diseases. You will have priority access to members, resources, programs, newsletter and support groups. 

 

Benefits of Patient Membership:

None voting member


  • Access to members with Syringomyelia, Chiari Malformation & Rare Diseases. 
  • 15% Service Discount - Business Members
  • Priority access to wellness Forum, workshops & programs
  • Access to Chat Room
  • News & Updates from Carion Fenn Foundation newsletter
  • Access to support, education & resources
  • Access to Monthly Support Group Meetings
  • Access to health & wellness Experts
  • Access to mental health experts
  • Access to support for information, education, and advocacy services

Affiliate/ Group ($150/ annually)

Affiliate Membership is open to organizations that provide products or services to persons with Syringomyelia, Chiari Malformation and Rare Diseases.  

 

Benefits of Affiliate Membership:

None voting member


  • Listing on and linkage on CFF website (www.carionfenn.org)
  • Regular news updates and newsletters from CFF
  • Access to support for information, education, and advocacy services
  • Access to be a speaker at Support Group Meeting
  • Priority Access to be an exhbitor at (1) CFF Wellness Programs
  • Receive priority Sponsorship at CFF conferences, forums, workshops & Wellness Programs


REGISTERED CHARITY #: 802775791RR0001 

TOGETHER WE ARE STRONGER®

www.carionfenn.org  -  smcm@carionfenn.org 

A place to share, learn and support each other. 

Copyright © 2015 - 2025 Carion Fenn Foundation - All Rights Reserved.



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