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Join our SM, CM & Rare Disease Community!
BECOME A MEMBER
Join us and become part of our community, representing and supporting patients & those impacted by Syringomeylia, Chiari Malformation, Chronic & Rare Diseases.
A place to share, learn & support...
Carion Fenn Foundation is a Registered Charity, providing Education, support and resources to the public and those impacted by Syringomyelia, Chiari Malforamtion and Rare Diseases.
Virtual Support Group
Patient / Individual ($25/annually)
Individuals who choose to become a member of Carion Fenn Foundation received benefits with the satisfaction of knowing that they are not alone and helping othes with Syringomyelia, Chiari Malformation and Rare Diseases. You will have priority access to members, resources, programs, newsletter and support groups.
Benefits of Patient Membership:
None voting member
- Access to members with Syringomyelia, Chiari Malformation & Rare Diseases.
- 15% Service Discount - Business Members
- Priority access to wellness Forum, workshops & programs
- Access to Chat Room
- News & Updates from Carion Fenn Foundation newsletter
- Access to support, education & resources
- Access to Monthly Support Group Meetings
- Access to health & wellness Experts
- Access to mental health experts
- Access to support for information, education, and advocacy services
Affiliate/ Group ($150/ annually)
Affiliate Membership is open to organizations that provide products or services to persons with Syringomyelia, Chiari Malformation and Rare Diseases.
Benefits of Affiliate Membership:
None voting member
- Listing on and linkage on CFF website (www.carionfenn.org)
- Regular news updates and newsletters from CFF
- Access to support for information, education, and advocacy services
- Access to be a speaker at Support Group Meeting
- Priority Access to be an exhbitor at (1) CFF Wellness Programs
- Receive priority Sponsorship at CFF conferences, forums, workshops & Wellness Programs