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1 in 12 & over 350 million person have a rare disease or dis
Join us and become part of our community, representing and supporting patients & those impacted by Syringomeylia, Chiari Malformation, Chronic & Rare Diseases.
Carion Fenn Foundation is a Registered Charity, providing Education, support and resources to the public and those impacted by Syringomyelia, Chiari Malforamtion and Rare Diseases.
Our meetings embrace support, provide educational information, and allow attendees to learn about resources available to them to live their best life. Join us for a place to share, learn, and support each other. Accessible WORLDWIDE to everyone with online access allowing you to join in to connect in real time.
Please share this event with Family, Friends and Contacts, to help others who require support.
Individuals who choose to become a member of Carion Fenn Foundation received benefits with the satisfaction of knowing that they are not alone and helping othes with Syringomyelia, Chiari Malformation and Rare Diseases. You will have priority access to members, resources, programs, newsletter and support groups.
Benefits of Patient Membership:
None voting member
Affiliate Membership is open to organizations that provide products or services to persons with Syringomyelia, Chiari Malformation and Rare Diseases.
Benefits of Affiliate Membership:
None voting member
REGISTERED CHARITY #: 802775791RR0001
TOGETHER WE ARE STRONGER®
www.carionfenn.org - smcm@carionfenn.org
A place to share, learn and support each other.
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